My daughter has childhood dementia and may not live past 16

Posted: 10th April 2026

Source: My daughter has childhood dementia and may not live past 16 – BBC News

Just before her fourth birthday Sophia Scott’s parents were told she had a condition that causes childhood dementia.

They walked away with a single sheet of paper and were advised to make the most of the time they had left with her.

Now 15, Sophia can no longer speak and cannot walk unaided. She may not live past her 16th birthday.

Her dad Darren and mum Amanda are now separated but both help care for Sophia.

Click here to read more: My daughter has childhood dementia and may not live past 16 – BBC News

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